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Where do we go from here?

On Thursday, we went to the doctor our appointment was at 1:00pm at the MFM office. We did vitals and got to hear our baby boy’s heartbeat. 142 bpm. It took awhile to find it, he was hiding as usual. We got in to see the Maternal Fetal Medicine Specialist at 2:05pm. We also had a chance to meet the Fetal Concerns Nurse Specialist who along with the Genetic Counselor has been so helpful in answering my questions, setting up appointments for us, and connecting us with individuals who are helping us on this journey.
We sat down with the doctor and he asked if we had any questions. Brian asked a few, but mostly we were wondering where do we go from here? The doctor told us that when baby is born he will be tested for Trisomy 13 and the focus will be on his heart and brain. We talked some about Palliative Care and when we would start that process. In most cases, Trisomy 13 babies do go to full term which was something we were both glad to hear. I was relieved I should get to be his lifeline until December 22 his due date and he would have the opportunity to grow and get stronger the next 3 months. The doctor also told me to stop googling and to focus on Trisomy 13. Here are some websites if you're interested in reading more: Trisomy 13 Syndrome and trisomy 13
Some of the final items we discussed were the importance of us connecting with the local Trisomy support group. I also asked how many cases at Toledo Hospital of Trisomy 13 do they see a year. The Doctor said around 10,000 ultrasounds are done in the MFM Toledo Hospital Office. Of those 10,000 ultrasounds around 10 are diagnosed with Trisomy 13 and most individuals terminate the pregnancy.


For our family termination was not an option regardless of how severe the baby’s condition is. Brian and I feel children are a gift from God and we have been blessed with this child. We serve a God who knows us, loves us, and has a purpose for all things. Our purpose right now is to be parents to Theodore and our new baby boy. Termination/Abortion is not something we believe in.
Our baby has a big road ahead of him, but we know he can do it with your prayers and support.

  • We ask that you please pray for Oscar to keep growing and that his body to heal any defects it can.
  • We also ask for prayers for Brian and I as husband and wife, being mom and dad, and being teachers to our students at school. Help us to find balance and a peace that can only come from God.
We have next week off from appointments then see the OB and have a recheck to get photos at My Little Me the week of August 21. I see the MFM Doctor for the last time and have two ultrasounds the week of August 28, and see my new OB the week of September 4. Thank you for your prayers and being on this journey with us.

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