Skip to main content

This Journey...

I am always thankful for the weekends as a chance to reset and refresh before another work week begins. Although I feel the weekends go by way, way too fast. This weekend's productive was not nearly as high as the last, but we were able to celebrate my Father-in-law's Birthday and enjoy time with family which is so sweet for the soul. Theodore and I also got to go to my best friend's, Larisa, daughter's first flag football game she cheered at. We are blessed to have family and dear friends close by that are with us through the ups and downs of this life.

We also have prayed lots this weekend and I have been leaving the Weather Channel on in the background with reports about Hurricane Irma. Brian's grandparents live in Naples along with his 2 uncles and their families. Brian also has cousins that live in Naples and West Palm with their families. My brother, Jeffrey, lives in Orlando with his wife, son, and daughter. I heard from Jeffrey a little before 9pm and he said they just lost power. He is fearful for tornadoes tonight especially between 2-5am. I will be glad when I wake tomorrow morning and the worst of this hurricane should have passed for my brother and his family. As you read this please say a prayer for the individuals in the Hurricane's path tonight and comfort and peace for those that have already endured it.

With my last blog post, I connected with a mother, Ashley, on FB that had a baby very similar to Oscar. She created a video on YouTube "Hyrum's First Year" and posted it on Hyrum's Birthday March 12, 2017. In the background, Rachel Platten's song Better Place is playing. The words to that song, so speak to my heart right now and every time I listen to it I cry. 

I also came across this Trisomy 13 - 13 Babies, 13 Stories. Violet Marie's mother collected these stories and posted/published one of them each day from March 1-13, 2014. March is Trisomy Awareness Month and the 13th of March is Trisomy 13 Awareness Day. 


I hope you all have a good week and thank you for following us, praying for our us, and being with us on this journey. 

Comments

Popular posts from this blog

Pulmonary Atresia with Ventricular Septal Defect (VSD)

To everyone that has prayed for Oscar. Please keep praying. Today at his fetal echo cardiogram we found out he has Pulmonary Atresia with Ventricular Septal Defect (VSD). What this means is that there normally is a pulmonic valve that opens and allows blood to exit the heart through the right ventricle. Oscar's pulmonary atresia valve is permanently sealed or absent. Along with that, the main pulmonary artery is very small about 1/4 of the size it should be and it is much smaller than the Aorta. Oscar also has fluid surrounding his entire heart which was not there on the August 1 ultrasound. His heart function is okay, but it is not good. During the 2 hour fetal echocardigram there were also signs of fetal arrhythmia of Oscar's heart rate dropping lower and more quickly then it should. Going forward we need your prayers for our son's heart. We believe in a God that heals and does miracles. We don't know if Oscar being born alive is going to be that miracle we are gi...

3 years

3 years today since Oscar left us and went to Heaven. I can't help, but replay his last days in my mind and vividly recall certain details. For any parent with a sick child whether that child was an infant, child, teenager, or adult those last days, hours, and minutes are such a blessing to have, but still so painful when you allow yourself to really remember them. You look back and you can't help, but wonder if you made the right decisions, did you push them too hard, why didn't you see how sick they really were. Those are things that after 3 years I still wonder and I am sure always will.  To someone that hasn't lived through their child dying you are probably thinking that doesn't seem healthy, but for us that have lived through this I beg to differ that I think it is completely normal. You see as a parent you always want to do what is best for your child to make sure they are happy, healthy, and feel loved. My child is not here to think about those things prese...

6 years

I have attempted to write this post multiple times in the last 2 years and just never have been able to quite finish it. My thoughts would come out, but they were never quite complete. So here is my attempt today. It will be 6 years on Saturday you have been gone and I can honestly say not a day goes by that you are not thought of. I constantly wonder what our life would look like if you were here. I know it would look different, but I can't help but think it would still be so very much the same just filled with even more love and joy because of you. I also am not so naive to know it would not have more hardships too. Your life, your odyssey, Oscar, gave so much hope and joy to others. You were so very loved by individuals that never even met you. I think that is what your Dad and I are still trying to do for you six years later to continue your odyssey. To honor your life and memory, by spreading love and hope, and remembering the sweet promise that we will be reunited with you a...