Day 11 - Hi #TeamOscar

Oscar turned 10 days old this morning at 1:35am. He is completely off oxygen and has no IV right now as his sugar levels are low, but not too low. The only medication he is on is Caffeine Citrate for apnea episodes and Phenobarbital and Actigall to prepare for his HIDA scan tomorrow.

Some happenings tomorrow Oscar will have a HIDA scan to look at the liver, gallbladder, and bile ducts. Today Brian and I are hopefully going to work with pediatric OT or PT to learn infant massage. Lastly, Oscar might have an MRI of his brain on Thursday or Friday.

So what’s next your thinking

🤔...
It seems the most pressing concerns are his kidneys and digestive system looking more specifically at his gall bladder, pancreas, and liver.

Our Prayer Request:
1. The continued function of his kidney and liver or for them to function even better. Oscar’s sugar levels would stay above 50 and continue to get higher...in the 60’s would be good.
2. Nothing serious, but Oscar spit up some of his breakfast...prayers for a calm tummy the rest of the day.
3. Lastly on this journey, I am finding you quickly can become upset at individuals opinions on what is best for Oscar’s life in the long term. When I am presented with these opinions I ask that the Lord help me to be a light for Him. Oscar is a testimony and I can’t let myself get in the way of him spreading hope and joy to other individuals.

Yesterday evening NILMDTS came and photographed Oscar and our family. This time was so special as it was the first time Theodore held Oscar and could touch him. I will share photos once we get them.

Our praises:
1. Oscar does not have CMV a viral infection.
2. No apnea episodes since noon yesterday.
3. Theodore was feeling better and was able to come visit yesterday

👶🏼💚👦🏼!

Comments

6 years

I have attempted to write this post multiple times in the last 2 years and just never have been able to quite finish it. My thoughts would come out, but they were never quite complete. So here is my attempt today. It will be 6 years on Saturday you have been gone and I can honestly say not a day goes by that you are not thought of. I constantly wonder what our life would look like if you were here. I know it would look different, but I can't help but think it would still be so very much the same just filled with even more love and joy because of you. I also am not so naive to know it would not have more hardships too. Your life, your odyssey, Oscar, gave so much hope and joy to others. You were so very loved by individuals that never even met you. I think that is what your Dad and I are still trying to do for you six years later to continue your odyssey. To honor your life and memory, by spreading love and hope, and remembering the sweet promise that we will be reunited with you a

Merry Christmas from The Kasers 2023

As the calendar inches closer to the end of the year we always enjoy seeing and hearing updates from our family and friends. No matter if we are fortunate enough to have our paths crossed or this greeting is our only interaction, know you are in our prayers and we hope you will enjoy this most blessed time of year. Our 4th child, Finneas McClish, graced us with his arrival on June 1st. It is hard to believe he is 6 months old already and lights up any room with his big smile. Brooks, now 4, started afternoon preschool at the elementary school across the street from our house. He has quickly blossomed into a social butterfly and is always looking forward to a playdate with new found classmates. Theodore, now a reading loving 3rd grader, thinks it is pretty cool having his little brother at school with him. Teddy also has really enjoyed being a part of Boy Scouts and is always looking for adventure. As you can imagine Julie has her hands full keeping everyone organized, but she tackles

Day 29 - With Broken Hearts

It is with broken hearts we wanted to let you know Oscar went home to be with Jesus at 11:35am today, Saturday, December 16, 2017. Oscar as you know was taken off the endotracheal tube on Tuesday, December 12, and placed on a nasal endotracheal tube to see if he could maintain his airway with less support. We also were providing him with Versed to help him relax and rest during this transition. Oscar had a large drop in his blood sugars on Thursday, December 14, in the evening. Due to this they placed Oscar on continuous feeds and upped his calories to 28 calorie Elecare. It seemed this helped, but it was not a complete fix. After his low sugar of a 26 on Thursday night he had a hard time getting settled even with doses of the Versed every 6 hours. Then on Friday, December 15, we tried Oscar off the ventilator with no support this was around 12:30pm. He seemed to be retracting lots and having a hard time breathing. We then placed him on nose ram cannula with oxygen support. The

Oscar's Odyssey/Stella's Story

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