Day 11 - Hi #TeamOscar

Oscar turned 10 days old this morning at 1:35am. He is completely off oxygen and has no IV right now as his sugar levels are low, but not too low. The only medication he is on is Caffeine Citrate for apnea episodes and Phenobarbital and Actigall to prepare for his HIDA scan tomorrow.

Some happenings tomorrow Oscar will have a HIDA scan to look at the liver, gallbladder, and bile ducts. Today Brian and I are hopefully going to work with pediatric OT or PT to learn infant massage. Lastly, Oscar might have an MRI of his brain on Thursday or Friday.

So what’s next your thinking

🤔...
It seems the most pressing concerns are his kidneys and digestive system looking more specifically at his gall bladder, pancreas, and liver.

Our Prayer Request:
1. The continued function of his kidney and liver or for them to function even better. Oscar’s sugar levels would stay above 50 and continue to get higher...in the 60’s would be good.
2. Nothing serious, but Oscar spit up some of his breakfast...prayers for a calm tummy the rest of the day.
3. Lastly on this journey, I am finding you quickly can become upset at individuals opinions on what is best for Oscar’s life in the long term. When I am presented with these opinions I ask that the Lord help me to be a light for Him. Oscar is a testimony and I can’t let myself get in the way of him spreading hope and joy to other individuals.

Yesterday evening NILMDTS came and photographed Oscar and our family. This time was so special as it was the first time Theodore held Oscar and could touch him. I will share photos once we get them.

Our praises:
1. Oscar does not have CMV a viral infection.
2. No apnea episodes since noon yesterday.
3. Theodore was feeling better and was able to come visit yesterday

👶🏼💚👦🏼!

Comments

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