Day 14 - 3rd Check at the HIDA Scan

Yesterday was not an easy day for us as we went for Oscar’s 3rd check at the HIDA Scan at 8am. As we walked down to Nuclear Medicine in my mind I was pleading, “Please Lord have the bile move.” Watching the scan it at first seemed uncertain if our prayers were answered but then you could tell nothing had changed. This was confirmed when the doctors rounded around 11am and got the report from radiology that the bile had not moved and there seems to be an obstruction.

What this means is that if the obstruction is not fixed Oscar will go into liver failure. This was hard news to hear. In utero, we heard about Oscar’s problems with his heart, lung, brain, kidneys...but the organ that is going to lead to his demise will more than likely be his liver. In about 2 hours Oscar will get 5+ml of blood drawn to be sent to the lab for panels. From there the doctors will review previous panels and today’s to see how the liver is functioning. Our prayer is that the numbers have not changed much since Monday.

Some praises from today. Oscar is becoming more babyish and seems to be engaging with his eyes and hands. He is starting to sleep with his mouth closed which helps keep his little mouth moist and I think with his respiration’s too. He is fussing when he has a dirty diaper as well. Last Brian, Theodore, and I went home for dinner together tonight. It was nice to be a family, but my heart ached to have Oscar home with us too.

Here is some information on Oscar’s liver condition. It is called Biliary Atresia. The procedure/surgery that would need to be done is called a Kasai and there are 3 different types.

If we decide surgery is the route for Oscar we will more than likely be transferred to Mott’s at U of M or Cincinnati Children’s.

Comments

6 years

I have attempted to write this post multiple times in the last 2 years and just never have been able to quite finish it. My thoughts would come out, but they were never quite complete. So here is my attempt today. It will be 6 years on Saturday you have been gone and I can honestly say not a day goes by that you are not thought of. I constantly wonder what our life would look like if you were here. I know it would look different, but I can't help but think it would still be so very much the same just filled with even more love and joy because of you. I also am not so naive to know it would not have more hardships too. Your life, your odyssey, Oscar, gave so much hope and joy to others. You were so very loved by individuals that never even met you. I think that is what your Dad and I are still trying to do for you six years later to continue your odyssey. To honor your life and memory, by spreading love and hope, and remembering the sweet promise that we will be reunited with you a

Merry Christmas from The Kasers 2023

As the calendar inches closer to the end of the year we always enjoy seeing and hearing updates from our family and friends. No matter if we are fortunate enough to have our paths crossed or this greeting is our only interaction, know you are in our prayers and we hope you will enjoy this most blessed time of year. Our 4th child, Finneas McClish, graced us with his arrival on June 1st. It is hard to believe he is 6 months old already and lights up any room with his big smile. Brooks, now 4, started afternoon preschool at the elementary school across the street from our house. He has quickly blossomed into a social butterfly and is always looking forward to a playdate with new found classmates. Theodore, now a reading loving 3rd grader, thinks it is pretty cool having his little brother at school with him. Teddy also has really enjoyed being a part of Boy Scouts and is always looking for adventure. As you can imagine Julie has her hands full keeping everyone organized, but she tackles

Day 29 - With Broken Hearts

It is with broken hearts we wanted to let you know Oscar went home to be with Jesus at 11:35am today, Saturday, December 16, 2017. Oscar as you know was taken off the endotracheal tube on Tuesday, December 12, and placed on a nasal endotracheal tube to see if he could maintain his airway with less support. We also were providing him with Versed to help him relax and rest during this transition. Oscar had a large drop in his blood sugars on Thursday, December 14, in the evening. Due to this they placed Oscar on continuous feeds and upped his calories to 28 calorie Elecare. It seemed this helped, but it was not a complete fix. After his low sugar of a 26 on Thursday night he had a hard time getting settled even with doses of the Versed every 6 hours. Then on Friday, December 15, we tried Oscar off the ventilator with no support this was around 12:30pm. He seemed to be retracting lots and having a hard time breathing. We then placed him on nose ram cannula with oxygen support. The

Oscar's Odyssey/Stella's Story

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