It is with broken hearts we wanted to let you know Oscar went home to be with Jesus at 11:35am today, Saturday, December 16, 2017.
Oscar as you know was taken off the endotracheal tube on Tuesday, December 12, and placed on a nasal endotracheal tube to see if he could maintain his airway with less support.We also were providing him with Versed to help him relax and rest during this transition.
Oscar had a large drop in his blood sugars on Thursday, December 14, in the evening. Due to this they placed Oscar on continuous feeds and upped his calories to 28 calorie Elecare. It seemed this helped, but it was not a complete fix. After his low sugar of a 26 on Thursday night he had a hard time getting settled even with doses of the Versed every 6 hours.
Then on Friday, December 15, we tried Oscar off the ventilator with no support this was around 12:30pm. He seemed to be retracting lots and having a hard time breathing. We then placed him on nose ram cannula with oxygen support. The nose ram cannula was not supporting him enough so we put the nasal endotracheal tube back in around 4:30pm. Oscar continued to have ups and downs in his sugar and was given 2 doses of Glucagon during the evening and was started on Diazoxide. With the administration of the Glucagon and Oscar responding to it, it was believed Oscar may have had Hyperinsulinism.
As Friday night continued into Saturday morning Oscar was continuing to having a hard time settling and was continuing to have a hard time breathing even with the nasal endotracheal tube. Around 3:30am Oscar began throwing up and he had bradycardia episode. We were able to stabilize him/stats, and decided he needed to be reintubated to allow him to rest and get his feeds/sugars back on track. Oscar was reintubated after a couple of tries around 5:30am. While intubated Oscar continued to have lots of secretions requiring deep suctioning and he bradycardia again while intubated. The doctor pulled the tube and he was provided CPAP through a mask. An IV line was the next goal after 6 tries of being poked and 4 individuals trying Oscar ended up with an IV in his leg and he was started on fluids and antibiotics due to the likelihood of him aspirating into his lungs causing pneumonia. Then around 7:30am he was reintubated a second time. By 8:00am Oscar was finally resting.
Around 9:00am, today, when it was time for care they checked Oscar’s IV and the line had blown. Our next option was surgery for a central line or a picc line. Due to Oscar’s heart condition and weight a central line was not an option as the anesthesiologist would not put him under at Toledo Hospital. We would need to transfer to a hospital with a Pediatric Anesthesiologist and Heart Surgeon just in case. Our other option was a picc line. Around 10am they came to set up for the picc line. I asked the NP if Oscar would make it through this and she said there was no reason he would not his stats were stable on the ventilator.
Minutes after this conversation Oscar’s heart rate plummeted and was undetectable using the monitors, but still beating. At that time Brian called both sets of our parents and they came to the hospital with Theodore. Everyone said their goodbyes to our sweet Oscar. Our parents left with Theodore and we called respiratory in to take out the ET tube. At 11:30am we asked the doctor to come in and listen. Oscar was pronounced dead at 11:35am. We are unsure when he passed, but he was in our arms.
Oscar had a large drop in his blood sugars on Thursday, December 14, in the evening. Due to this they placed Oscar on continuous feeds and upped his calories to 28 calorie Elecare. It seemed this helped, but it was not a complete fix. After his low sugar of a 26 on Thursday night he had a hard time getting settled even with doses of the Versed every 6 hours.
Then on Friday, December 15, we tried Oscar off the ventilator with no support this was around 12:30pm. He seemed to be retracting lots and having a hard time breathing. We then placed him on nose ram cannula with oxygen support. The nose ram cannula was not supporting him enough so we put the nasal endotracheal tube back in around 4:30pm. Oscar continued to have ups and downs in his sugar and was given 2 doses of Glucagon during the evening and was started on Diazoxide. With the administration of the Glucagon and Oscar responding to it, it was believed Oscar may have had Hyperinsulinism.
As Friday night continued into Saturday morning Oscar was continuing to having a hard time settling and was continuing to have a hard time breathing even with the nasal endotracheal tube. Around 3:30am Oscar began throwing up and he had bradycardia episode. We were able to stabilize him/stats, and decided he needed to be reintubated to allow him to rest and get his feeds/sugars back on track. Oscar was reintubated after a couple of tries around 5:30am. While intubated Oscar continued to have lots of secretions requiring deep suctioning and he bradycardia again while intubated. The doctor pulled the tube and he was provided CPAP through a mask. An IV line was the next goal after 6 tries of being poked and 4 individuals trying Oscar ended up with an IV in his leg and he was started on fluids and antibiotics due to the likelihood of him aspirating into his lungs causing pneumonia. Then around 7:30am he was reintubated a second time. By 8:00am Oscar was finally resting.
Around 9:00am, today, when it was time for care they checked Oscar’s IV and the line had blown. Our next option was surgery for a central line or a picc line. Due to Oscar’s heart condition and weight a central line was not an option as the anesthesiologist would not put him under at Toledo Hospital. We would need to transfer to a hospital with a Pediatric Anesthesiologist and Heart Surgeon just in case. Our other option was a picc line. Around 10am they came to set up for the picc line. I asked the NP if Oscar would make it through this and she said there was no reason he would not his stats were stable on the ventilator.
Minutes after this conversation Oscar’s heart rate plummeted and was undetectable using the monitors, but still beating. At that time Brian called both sets of our parents and they came to the hospital with Theodore. Everyone said their goodbyes to our sweet Oscar. Our parents left with Theodore and we called respiratory in to take out the ET tube. At 11:30am we asked the doctor to come in and listen. Oscar was pronounced dead at 11:35am. We are unsure when he passed, but he was in our arms.
Neither Brian or I thought Oscar’s journey would end like that, and as we went home together today it just seems wrong. We aren’t bringing home our baby, our Oscar, our son. In the days ahead, we will be posting memories of Oscar. We will also post on here arrangements once they have been decided.
As hard as today is Oscar is at peace, he is resting comfortably, and happy. He literally is now in God’s hands. We were blessed to love Oscar for 29 precious days and I think many of you grew to love him too. Thank you for walking with us on this journey and loving Oscar and our family. I am a better person because of Oscar. #OscarStrong 
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💪🏻#TeamOscar
👶🏻💚💪🏻#TeamOscar
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