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Pulmonary Atresia with Ventricular Septal Defect (VSD)

To everyone that has prayed for Oscar. Please keep praying. Today at his fetal echo cardiogram we found out he has Pulmonary Atresia with Ventricular Septal Defect (VSD). What this means is that there normally is a pulmonic valve that opens and allows blood to exit the heart through the right ventricle. Oscar's pulmonary atresia valve is permanently sealed or absent. Along with that, the main pulmonary artery is very small about 1/4 of the size it should be and it is much smaller than the Aorta. Oscar also has fluid surrounding his entire heart which was not there on the August 1 ultrasound. His heart function is okay, but it is not good. During the 2 hour fetal echocardigram there were also signs of fetal arrhythmia of Oscar's heart rate dropping lower and more quickly then it should.

Going forward we need your prayers for our son's heart. We believe in a God that heals and does miracles. We don't know if Oscar being born alive is going to be that miracle we are given, but we trust our God.

Our Prayer Request:
  • Oscar's Pulmonary Artery to stay open and if possible for it to open wider.
  • The fluid around Oscar's heart would disappear or lessen.
  • Finally, that Oscar's Patent Ductus Arteriosus (PDA) would appear. This would allow a second route for the blood to get to the lungs and get oxygenated.
I did not sleep well last night and I was iMessaging back and forth with my sister-in-law Emilee who lives in Malaysia this morning (the 12 hour time difference works well for early morning texting when I can't sleep). She asked how I was doing and to be honest I was scared and I am still scared, but as I sat this morning the Lord brought 2 verses to my mind. They did not make sense to me this morning, but after the consult appointment today with the MFM Specialist, Genetic Counselor, Pediatric Cardiologist, Neonatologist, Fetal Concerns Nurse Specialist, and Echo Tech I now understand why He brought them to me.

 He replied, “Because you have so little faith. Truly I tell you, if you have faith as small as a mustard seed, you can say to this mountain, ‘Move from here to there,’ and it will move. Nothing will be impossible for you.”~Matthew 17:20~ 

 because of your partnership in the gospel from the first day until now, being confident of this, that he who began a good work in you will carry it on to completion until the day of Christ Jesus. ~Philippians 1:5&6~

It seems a little hopeless right now for our Oscar, but I am clinging to those words that Jesus spoke to his disciples that even if you have faith as small as a mustard seed, you can say to this mountain, 'Move' and it will. Nothing is impossible for our God and what He has begun in Oscar's life is not finished yet. The Lord hears Brian and I's cries and pleads for our son's life and God knows our hearts. He gave Oscar to us and as painful as it is The Lord gives and takes away. Blessed be the name of the Lord. ~Job 1:21~ God loves us and loves our sons beyond anything Brian and I can fathom.


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