Day 13 - What Oscar Likes :-)

Oscar has been developing his personality and letting us know what he likes and doesn’t.

Likes:
- Going for rides - I am so glad we went to Nuclear Medicine yesterday because otherwise we would have never known he enjoys that

😊!
- Laying on his sides - Oscar enjoys laying on his side while he eats and sleep.
- Eating!!! Even though he is tube fed this kid knows when it is time to eat. 15 minutes before a feed he starts getting cranky

😝

👶🏼

💚.

We have his HIDA scan at 8am this morning our prayer is that some of the radiation has been processed by his liver bile.

Comments

Merry Christmas from The Kasers 2023

As the calendar inches closer to the end of the year we always enjoy seeing and hearing updates from our family and friends. No matter if we are fortunate enough to have our paths crossed or this greeting is our only interaction, know you are in our prayers and we hope you will enjoy this most blessed time of year. Our 4th child, Finneas McClish, graced us with his arrival on June 1st. It is hard to believe he is 6 months old already and lights up any room with his big smile. Brooks, now 4, started afternoon preschool at the elementary school across the street from our house. He has quickly blossomed into a social butterfly and is always looking forward to a playdate with new found classmates. Theodore, now a reading loving 3rd grader, thinks it is pretty cool having his little brother at school with him. Teddy also has really enjoyed being a part of Boy Scouts and is always looking for adventure. As you can imagine Julie has her hands full keeping everyone organized, but she tackles ...

Pulmonary Atresia with Ventricular Septal Defect (VSD)

To everyone that has prayed for Oscar. Please keep praying. Today at his fetal echo cardiogram we found out he has Pulmonary Atresia with Ventricular Septal Defect (VSD). What this means is that there normally is a pulmonic valve that opens and allows blood to exit the heart through the right ventricle. Oscar's pulmonary atresia valve is permanently sealed or absent. Along with that, the main pulmonary artery is very small about 1/4 of the size it should be and it is much smaller than the Aorta. Oscar also has fluid surrounding his entire heart which was not there on the August 1 ultrasound. His heart function is okay, but it is not good. During the 2 hour fetal echocardigram there were also signs of fetal arrhythmia of Oscar's heart rate dropping lower and more quickly then it should. Going forward we need your prayers for our son's heart. We believe in a God that heals and does miracles. We don't know if Oscar being born alive is going to be that miracle we are gi...

3 years

3 years today since Oscar left us and went to Heaven. I can't help, but replay his last days in my mind and vividly recall certain details. For any parent with a sick child whether that child was an infant, child, teenager, or adult those last days, hours, and minutes are such a blessing to have, but still so painful when you allow yourself to really remember them. You look back and you can't help, but wonder if you made the right decisions, did you push them too hard, why didn't you see how sick they really were. Those are things that after 3 years I still wonder and I am sure always will. To someone that hasn't lived through their child dying you are probably thinking that doesn't seem healthy, but for us that have lived through this I beg to differ that I think it is completely normal. You see as a parent you always want to do what is best for your child to make sure they are happy, healthy, and feel loved. My child is not here to think about those things prese...

Oscar's Odyssey/Stella's Story

Search This Blog